Cystic Fibrosis
Cystic fibrosis (CF) is the most common fatal genetic disease affecting children and young adults. At present, there is no cure. Just a few short years ago the average median age was only 42 years.
CF causes various effects on the body, but mainly affects the digestive system and lungs. The degree of CF severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, will eventually lead to death in the majority of people with CF. Other complications caused by cystic fibrosis are: Difficulty digesting fats and proteins, Malnutrition, Progressive lung damage, CF related diabetes, chronic Sinus infections. Other symptoms include Persistent cough with productive thick mucous, Wheezing and shortness of breath, Frequent chest infections, which may include pneumonia, Bowel disturbances, such as intestinal obstruction or frequent, oily stools, Weight loss or failure to gain weight despite increased appetite, Salty tasting sweat and Infertility (men) and decreased fertility (women).
There have been great strides made in the last few years getting life-changing drugs to market. Because of these scientific advancements, people with CF are starting to live longer and fuller lives and we can see hope on the horizon.
CF causes various effects on the body, but mainly affects the digestive system and lungs. The degree of CF severity differs from person to person, however, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, will eventually lead to death in the majority of people with CF. Other complications caused by cystic fibrosis are: Difficulty digesting fats and proteins, Malnutrition, Progressive lung damage, CF related diabetes, chronic Sinus infections. Other symptoms include Persistent cough with productive thick mucous, Wheezing and shortness of breath, Frequent chest infections, which may include pneumonia, Bowel disturbances, such as intestinal obstruction or frequent, oily stools, Weight loss or failure to gain weight despite increased appetite, Salty tasting sweat and Infertility (men) and decreased fertility (women).
There have been great strides made in the last few years getting life-changing drugs to market. Because of these scientific advancements, people with CF are starting to live longer and fuller lives and we can see hope on the horizon.
Salty Girls challenge this norm, and strive to put an end to body shaming. No more feeling embarrassed or ashamed of their bodies, The Salty Girls have now inspired other women with CF, from literally all around the world. They embrace their body’s scars and all, to inspire women everywhere to do the same. These women truly are the epitome of remarkable strength, enormous resilience, and unique beauty both inside and out. Not only is this book about raising awareness for CF, but it can truly reach all females who have ever felt this way.
Just Breathe tackled the issues facing adults living with Cystic Fibrosis. CF has always been known as a "childhood disease", simply because the mortality rate and median age was so low. But this has all changed in the last 20 years, especially within the last 5-10 years. Over half the patients with Cystic Fibrosis are over the age of 18. That's the good news. The bad news is this is still a fatal disease with no cure yet.
Below is just some of the media exposure SaltyGirls received...
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FLOATING DOGS |
One Colour Lockdown Project
Living Heroes
I divide my time between my home in Canada and Connecticut. I sometimes would go to the local VFW chapter, and i noticed even the Viet Nam vets were getting up there in age. And the vets from older wars, like Korea and WW2, are really getting up there. These heroes are slipping away, with WW2 vets well into their 90's now. Many of them never having had the proper chance or forum to tell their stories, let alone have a proper portrait made. I wanted to capture their honour and integrity, with a bit of gravitas thrown in. These Veterans deserve a great portrait to honour their contribution to our freedoms. Overall so far its been a fun, enlightening and inspiring project to undertake. I feel honoured taking their photos, and can't wait to get back and finish the project.
Click on the logo above to view some of the award winning work in Vogue Italia.
Roller Derby
First joint venture of EZIO+IAN, featuring CN Power of Toronto Roller Derby, The Hammer City Roller Girls, and Ghoul Guides
and Boneyard Betties of the South Simcoe Rebel Rollers.
and Boneyard Betties of the South Simcoe Rebel Rollers.
